Friday, May 15, 2009

It's 11:00pm and we are finally settled in our hospital room. Luke's procedures were delayed and he did not go in until 1:30. It took over 5 hours to complete all procedures and we feel very blessed to share that Luke is doing well and recovering quickly. He is already ordering us and the nurses around. From the moment he woke up he was telling the nurses what they were suppose to do and how to do it. That's our boy :)

As for the Endoscopy (GI) It was found that Luke has a very inflamed esophagus and will be treated aggressively with medication.

The catheterization was performed by Dr. Perry and his team, they took amazing care of Luke. They were able to balloon Luke's Left Pulmonary Artery and they believe that this will help open up the narrowing in his artery. With regards to the Pulmonary Valve they verified the obstruction and it looks like his valve flattened and shrunk, which most likely was a cause in his narrowing and obstruction. Dr. Perry ballooned Luke's valve and stented the valve. First results showed that it everything went well, but with the stenting process it alleviates the function of the "valve" and allows regurgitation back into the heart. Depending on how Luke's body tolerates the regurgitation and as long as the valve does not narrow again, this will determine the level of success of the procedure. This will also determine how much time the stenting process will buy Luke before he has to have an open heart repair.

Our prayer now is for Luke's heart to function well and for a quick and healthy recovery.

We are so thankful for our Gracious God. We pray that he will continue to place his healing hand on Luke.

We want to thank everyone for all your prayers, emails, and calls they have meant so much!! Also, a great big thank you to Grandma Laura, Papa Dave, Grandma Marsha, Big Al, Grandpa Jim and Auntie Bridget for coming up to support us and be there for Luke. He was so excited to have you here and you were a big part once again to a big day. We love you!!

We will keep you posted on Luke's recovery.

All our love,
The Chez Family


Grandpa Jim, Grandma Laura, Papa Dave, Luke, Grandma Marsha and Big Al

Luke and Auntie Bridget the night before the procedures


Just checked in to the hospital


Mommy couldn't stay for the X-Rays because of baby girl Chez
However, Grandma Marsha and Grandma Laura did a great job!



One of our first smiles




2 comments:

  1. so so happy to hear that everything went well and that all the family came up to be with you guys. luke looks great considering all that he went through! praising our good and gracious God right now. =)
    will call you today.
    love,
    victoria

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  2. Hello Chez Family,

    First, thank God for the successful Cath. etc for your son. It's amazing what they can do in the Cath lab now as opposed to open heart.

    I just had to write you a note after reading about you on Moriah's blog. We are a CHARGE family from MO that has gone through the same news of having a second pregnancy with the same defects. We have a 12 year old boy, Peyton with CHARGE, were blessed with two typical children one boy, one girl and then had our fourth, a boy, with CHARGE. My two worst memories of my life are on an ultrasound table as you can relate.

    Our youngest, Tate, was born with Tet of Fallot like your kiddos. I know all too well the many, many fetal echos to watch for how this was growing, that was developing. He had his third open heart and last repair in May of '07 where he got a contegra graft for his Pulmonary Atresia along with repairing the rest of his heart and is doing fabulously from a heart perspective. We will keep your precious Luke and baby girl in our constant prayers.

    It's so hard to experience such sadness during a pregnancy, so I will pray for you Terra too, for extra strength and peace.

    God Bless,
    Corrie

    www.caringbridge.org/visit/tateyoung

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