It's been about three weeks since Luke's procedure and he is doing great. The week we came home Luke went to LA to visit his cardiologist, Dr. Skalansky and our favorite Echo technician Joseph. Luke was really nervous to go to his appointment, but came home with the biggest smile ever! Joseph surprised him with a set of cars. Joseph has been the one who has done most of Luke and Gracie's echo's, and has become a dear friend to our family.
After reviewing Luke's heart, Dr. Skalansky said the obstruction has been dramatically improved and Luke is doing well. We are continuing to pray that the stent holds up well and that his heart function stays strong with the new amount of regurgitation that is taking place from his pulmonary valve. As there is no function of the pulmonary valve at this time.
As for Luke's GI issues we have been working with Dr. Cox up at Lucielle Packards Children Hospital, in hopes to correct his reflux and esophagitis. We have seen only a very little improvement at this time. We feel fortunate to have found Dr. Cox and feel confident he is going to help guide us along the right path for Luke. We still have a long road ahead of us, but are praying for light at the end of the tunnel.
As for our baby girl Chez, she is growing and weighs in at 2lbs 3 oz. She is incredibly active and already proving she is going to be a little fighter. We are very excited to meet our baby girl.
As we anticipate our baby girls arrival, it comes with deep emotions of yearning for our Gracie. I've had many dreams of Gracie lately and our hearts as always are desperately missing her. It's been difficult to start planning for our little girl when our hearts are still grieving so very much for Gracie. We do not want to take anything away from our new little blessing we just need help from God to help our hearts during this time. Please pray for Adam, Luke and I that God gives us peace in our hearts and that he reminds us of his ultimate glory.
Luke talks about his Gracie so very much still. He told me that Gracie would love for her new little sister to have all her toys. :) He has such a sweet heart and I know he is just going to love on his little sister. He has also promised to tell his new sissy about Gracie and how special she is.
Luke has really enjoyed being back at home. He has had a great time with all his visits and play dates with friends and family.
We thank everyone for all your prayers, love and support.
All our love
That last bit brought a few tears. I can't begin to imagine your pain and hurt! Know that you are always in my prayers...your entire family. Glad to hear the good news on the heart front and hoping with you on the GI stuff...that is no fun.
ReplyDeleteAbsolutely continuing to pray for you all - comfort, hope, faith and joy on this journey. I love reading what Luke has to say (such a wise boy!), and I love that Baby Girl is showing her feistiness! With much love - *h
ReplyDeleteI found your blog through Victoria, Moriah's Mom. I had the pleasure of meeting Victoria in April 2009, when my daughter had to return to California for her 5th heart cath. My daughter Callie was born with Hypoplastic right heart, pulmonary atresia, MAPCAS. She is missing both pulmonary artery and pulmonary valve which is extremly rare. She is currently 21mths old and has had 4 surgeries up to this point, all by Dr. Hanley (the best surgeon ever) and returns in September for her 6 heart cath and maybe 5 surgery. I can only imagine your fear and anticipation for your new arrival of your sweet baby girl. Dr. Hanley is an amazing surgeon and man he has done things for our daughter that probably nobody else could do. Your daughter will be in the best hands possible. You are a true inspiration and the courage you have shown and continue to show is so awesome. Your family will be in my prayers each and everyday. On another note, I found it interesting when you said, Luke vomits at least once a day because my daughter is the same and on reflux meds and has had many GI studies done. Thank you for being such a strong woman and sharing your story.
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