Sunday, November 15, 2009

Heading up to Stanford

So sorry that I wait so long to post and then it becomes this long....update. For those of you who like the updates, enjoy. For those of you that just check in for pictures, scroll down :) Either way thank you for stopping by.

About four to five weeks ago we had a huge scare with Miss Abigail. As I reached the living room to get her bottle I noticed her cry got a little different, so I ran back to the bedroom to see her face turn completely pale and then noticed she was not moving or breathing. I quickly picked up her lifeless body and started yelling her name. Adam ran downstairs and while I was trying to be calm for Luke we quickly called 911. It was such a difficult experience to go through. I remember holding Abigail and thinking No Lord not her too. It still brings tears to my eyes to think back to that moment.

We were rushed to CHOC :( and were admitted for the night) Many tests were run and unfortunately it was never found as to what caused the episode. There were a couple thoughts as to what may have happened. 1. Tet Spell or 2. She may have aspirated.

We were released the next day and sent to LA for further testing. We have been closely monitored and had scheduled a Catheterzation for tomorrow. Although, after Adam and I had a discussion with Dr. Perry and Dr. Hanley we decided we did not want to have multiple caths prior to her surgery as the can be very risky. Therefore, we are heading up north tomorrow and will start off doing a lung perfusion. If there is concern with the blood flow she will then be taken in for a cath. If not, we will be heading back home and be closely followed until December 21, which is when the catheterzation has been scheduled.

As far as miss Abigail, she is just a great baby. Besides the fact she does not like to sleep, she is so easily pleased. Having one baby at a time is much different than twins. I'm guessing that is why it is so much easier this time around. We are all just loving on her and enjoying her adorable smiles, new laughter and all her cooing. She LOVES her baths and LOVES family time. Her eating has slowed down some (which is to be expected) but she is still putting on the lbs. (thank you God!)

Now for our Luke. If you would of asked me a week ago how things were, I would of probably cried. Luke was really struggling in so many areas, partially adapting to having to share time with mommy and daddy but it was mostly feeding. He was vomiting at least three times a day for a few weeks. Most of it was behavioral and since he knows how to do it so well, it was constant. If he did not want to go to school, soccer, to get a hair cut or go to a friends house he would bring all his food up right before or at the location. Of course this brought on much stress for Adam and I, which caused frustration with Luke and in return caused Luke to feel bad. I'm so happy to say for now this cycle has ended.

We have started to try "big boy food" once again. It takes us an hour to just get 1/2 sandwich down, but we are going to try and continue on working on this and with Gods help we pray that Luke will start learning how to eat what most kids his age are eating. No more jar food is our prayer and hope. As for Luke's heart, looks like we will be doing a catherterzation early next year to see when they feel surgery is needed.

Luke is back to feeling good and is enjoying school, family time and visits from friends and family. We have a new neighbor Carly, she has more energy than any other 4 year old I know, so we are so excited to see Luke try and keep up. The first time meeting Luke she shared, "I do like girl stuff, but I also love to play sports and things that boys like too!" Too funny!

As for Adam and I and how we are making it through all this......well that's another blog update, besides I probably lost half my readers by now. :)

Thank you for checking in and we will keep you updated once Abigail has her Lung Perfusion test.

For those of you who are my Facebook family and friends you have already seen the photos below, but I wanted to share them with my blogger friends and family.












Thank you Lord for blessing me with my children.
I'm holding on to each precious moment that you give to
me with them. I had no idea my heart could stretch
so much! Thank you!

Please help us to pray for the Doctors and Nurses who will be assisting in Abigails testing. For Abigail to not feel too much pain and for our tired hearts. We need God to fill our hearts with strength as we have been feeling emotionally exahausted thinking about Abigails upcoming surgery. Lastly for God to remind us daily of his soverignty.
Thank you!
All our Love, The Chez Family

3 comments:

  1. So glad for the update! OH MY GOODNESS...you had me all terrified with the update on baby! I can't even imagine the impact that has on you. :0(
    So glad that everyone is working together to do what is best for her.
    Know that I pray over the feeding issues for you...I KNOW how difficult this is to over come. You, as a parent have no control over it.
    Thankful for the updates and the pictures!!
    thank you :0)

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  2. Thinking of you and keeping you close in prayer as you travel up here for sweet Miss Abbie. Thank you for the updates on your sweeties...I am so sorry for the difficulties you all have been enduring, but love that you are continuing to savor the beautiful moments with your Luke and Abbie.

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  3. Chez Family - Keeping you in constant prayer. Please let us know if there is anything we can do to help. Love- The Queen Family

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