The procedure went well today and although Abbey was very uncomfortable in the beginning, she is now as happy as can be and recovering nicely.
The results of today's procedure were not as great as we hoped them to be but, they were still good. Abbey's pulmonary arteries have grown however, there still is quite a bit of narrowing in a few areas. With that being said Dr. Hanley will need to open up and patch the pa's in hopes to achieve adequate pressures to her lungs. Surgery is still scheduled for January 6th and at this time we are praying that Dr. Hanley will be able to do a complete repair.
Which will consist of: (for all those that like more details :)
Addressing the pulmonary arteries
placing the conduit
figuring out what he wants to do with the remaining collaterals
closing up the VSD
Sometimes the complete repair is not able to be done due to time constraints on the bypass machine, but we are very hopeful that it will be done. It will be our prayer anyways.
Today after I handed Abbey off to the nurses I felt the usual sadness that overwhelms me at times.
I was sad because we are at the hospital instead of:
Being at home for Luke's Christmas program at school that he is going to miss again this year. Also, for the fun day they are going to have on Friday at school. Sad that Abbey is having to go through this when she should be at home laughing, cooing, sleeping and playing.
Also, feeling sad because this is the time of year that is so fresh in my mind of Gracie. On January 9 it will be 2 years that she is no longer with us. I can remember everyday that led up to the 9th.
The hospital has this way of consuming my thoughts and making me feel so sad about what our children have had to go through and continue to go through. Thankfully after a few hours of being here I pretty much had to say OK Terra that is enough! Well to be honest it was God of course weighing in saying, "hello" are you forgetting about me? Is my Grace not sufficient enough for you.
I cannot forget to be joyful in hope, patient in affliction and faithful in prayer. Romans 12:12
So....after reading a couple bible verses I'm feeling much better. God is good ALL the TIME :)
We hope to be released tomorrow, but we are still unsure. Will keep you posted.
Thank you for all your love and prayers.
Chez Family
Oh my goodness! So glad she is recovering well. *Thank you Jesus!*
ReplyDeleteIt is so natural to NEED your family to be physically together. *I completely get it* Thank you for reminding us...just how big He is. Praying that you feel His presence as He holds your precious family in the palm of His hand...carrying you through this leg of the journey.
Jan 5 is Caleb's birthday...I will be reminded to begin bathing you all in prayer, as you prepare for surgery and feel the great sting of Gracie's physical absence.
Much love to all of you!!
Thankful to come here and read that Abbey is recovering well. I will pray that Dr. Hanley is able to do the complete repair in January.
ReplyDeleteIsn't God's timing questionable to us sometimes? I know that He IS good all the time... I am holding on to the hope that He intends to give you a miracle or at the very least, a good memory to add to the ones you carry for January 9th.
My oldest son passed away from surgery complication on January 2, 1993. Stepping out and taking the chance on a healthy baby, I 'made a deal' with God-I wanted a healthy girl born in the spring since Clint was a fall baby. Of course, my new son was due on Clint's birthday!
Merry Christmas~
Lisa in TN
Mom to 6!
4 HH and 2 complex CHD
We will be praying for you in this difficult time comming up to the holidays especially. I can't even imagine. Will also be praying for Abbeys upcomming surgery.
ReplyDeleteI LOVE ROMANS 12:12!! LOVE! And Romans 8:28...and Psalms 73:26 ok, I just kind of like all of it!
As always, keeping sweet Abbey and you guys in constant prayer. One foot in front of the other......you do it well:) Sending lots of love - The Queen Family
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