When we first learned our twins were going to be born with Congenital Heart Disease we were filled with extreme mixed emotions. The excitement we were feeling suddenly turned into overwhelming uncertainty. Once we started to digest all the information we were given, we started to turn to the Internet. We felt lost, alone and afraid...we were about to travel down a path we knew nothing about. As we searched the Internet we had, of course found medical information, but I longed for something more....I searched for children and families who had Congenital Heart Disease and sadly I could not find anything out there....
Fast forward three years...We had met a few amazing Heart families throughout our journey. We were no longer alone and we found comfort within eachother....an instant bond with these families. Then, shortly after our sweet Gracie went to be with Jesus, We were blessed to meet the Nelson’s. We became instant friends. They had sent a link over to their “Blog”... A place where they shared their journey and life with their beautiful sweet amazing daughter Moriah.
As Adam and I read their blog, we started to feel encouraged and inspired. I admired them, their strength and there undeniable Faith in our Lord Jesus Christ. As I started to scroll down their web page I noticed all the blogs they followed. It started off slow, but then I was hooked, I started reading as many as I could. It was this world of Simply Amazing children and families who have been affected by Congenital Heart Disease. Finally a place where you no longer felt alone, a place where an instant bond was formed. The blog world...a place where you could read raw true emotions. It is where I believe we have all witnessed:
Faith
Courage
Love
Support
Strength
Peace
Obedience
Clarity
Honesty & Openness
Education
Compassion
Willingness
Surrender
Simplicity
Gratitude
Tenderness
Purpose
Joy
Humor
Patience
Balance
Transformation
and so much more
Which brings me to why I am writing this post. As most of you are aware, we started a foundation, Hopeful Hearts after our sweet baby girl went to be with Jesus. We wanted to have a way to reach out to other families who have been affected by Congenital Heart Disease. We wanted to find a way to provide Love and Support to all these families.
We are currently in the process of updating our website. If you click here you will be able to see the little Angels we currently have on our “special hearts” page. When a family first learns of their child’s heart condition they are filled with so many “mixed emotions” it is our desire that we can all together, provide them with hope, peace and comfort. These of course all are found through Christ, but he also gives us means to help eachother...and that is where you come in.
If you feel led to share your story and you are a family with a child or if you yourself have been affected by Congenital Heart Disease, we would be honored to have yourself, your child or family on our website.
If you are interested, please help me in doing the following:
-Send an email to me at terrachez@hopeful-hearts.org
-Please state “you give Hopeful Hearts permission to display a photo of your child or self along with your Blog address”
-If there is a specific photo you would like please include, if not, I can choose one from your blog (child or family photo)
-*Important* Please list your child’s exact condition as you would like for it to appear i.e. Tetralogy of Fallot, with PA MAPCAS
Please note at anytime if you feel you would like to have your information removed it can be done within 24 hours.
To my fellow bloggers~Please help me spread the word
Each one should use whatever gift he has received to serve others, faithfully administering God’s grace in it’s various forms 1 Peter 4:10
Thank you!
Sending much love,
Terra
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