Wanted to send an update on our favorite little man, Luke.  On August 5, we went to see Dr. Perry. (the Dr. who put Luke’s stent into his existing valve)  The echo showed there has been no changes at this time.  Praise God!

 An echo is one appointment Luke does not mind

I don't like Luke to be surprised by any appointments so, after Luke’s open heart surgery back in September ‘08’ I promised him I would always be honest and let him know what each appointment was for.  Of course sometimes this ends up being really difficult when I have to tell him when he is going in for a procedure.   Which brings me to last Tuesday....

After meeting with Dr. Cox (Luke’s GI Doctor) we felt we needed to complete one final test (Endoscopy) in hopes to find the cause of his constant discomfort and occasional vomiting.

 We are already aware of the fact that Luke has:

-Reflux

-Esophagitis

-Possible Abdominal Migranes

But we wanted to make sure we were able to catch any allergies and most importantly if Luke had a bacterial infection. 

We had to wake Luke up early on Tuesday for the procedure, which sadly is a sign to him that he is going to the hospital.  It broke my heart because he started crying and saying, “Mommy and Daddy” please don’t take me there, followed by what are they going to be doing?  I explained we had to go do a test to check on his stomach.   Then when we were there he was crying and begging not to get the red medicine (Versed-helps in making them sleepy before the have to be put to sleep and also helps with anxiety).  He of course threw it up :( and we had to take him in without the medication.  I was unable to go in the room, since I am pregnant so Daddy went in with him.  I was sitting in the room as I heard Luke screaming to his Daddy because they were trying to put the mask on him.  Thank goodness the procedure was only 20 minutes and Luke started to wake up within 20 minutes thereafter.  

As we were in the recovery room, Luke just did not seem right.  He then sat up and started throwing up blood. :(  Which was followed by his entire face turning bright red.  They explained the blood was from the biopsy and they felt the redness and swelling of the face was  some type of allergic reaction to the antibiotic.  Although this was a small procedure compared to the others he has had to face, it was still heartbreaking to see Luke go through all of this.

I did my usual one minute thing, “Lord why is it we have to go through all this?”

Then the wonderful thing that we are blessed with is, God’s comfort.  It’s just in our tired moments and when we hurt for our children we loose sight sometimes of God’s soverignty. Which in my heart I feel is totally OK and normal.  As long as we are brought back to the truth and do not dwell on things that our not in our hands. 

*Thank goodness for our faith in the Lord and thank goodness he is there whether it’s big or small he is always there catching us and pulling us back up.

After a few hours we were able to come home and by the next day, Luke was ready to go.  We are thankful this will be one of the last “big” test he will need in regards to his GI Issues.  Once the results are provided we can move forward and continue a plan of the correct meds and continue to work on feedings.

So glad it is behind us and now our little guy is back to having some fun.

Last Sunday we got a special visit from Grampy and Mimi.  We went to Cheesecake Factory to celebrate an early birthday for Grampy.  We had a great visit and of course Luke had lot’s of fun playing with them and was excited that they had a sleep over.  

On Thursday we had another real special visit.  When I became friends of the Nelson family I was so deeply touched when Victoria shared an update with Moriah's sweet friend Vivian.  It made me so happy to see the girls together and the bond that Victoria and Hannah had instantly, as most heart moms find.  I've since followed Vivian's blog that is dedicated to her by her mom, "Hannah" and have been so touched and inspired.  Hannah and I shared some emails and since she lives in the area she offered to come visit Luke and I.  AND what a treat it was!  I just loved them both.  Grandma Laura, Luke and I truly loved our time.  Thanks Hannah for the visit, YUMMY food and for Luke's book. 

 

Grandma Laura and Grandma Marsha took Luke to San Francisco on Friday, for the day.  They spent time at pier 39 and had lot’s of fun! Luke is the happiest boy in town when he is with his Grandma's. :) 

The end of our busy week...yesterday we headed down to the park (at our complex where we are staying) and enjoyed a hosted “kids day at the park”  Luke had so much fun! Later that evening with only 3 days left for our baby girl...Adam and I went on what will probably be our last date night for quite a while :)  Thanks Grandma Laura and Grandma Marsha for watching Luke!

We have our c-section scheduled for Tuesday, August 18th at 9:00am.  Please help us pray for a safe delievery and for God to guide the hands of all the doctors and nurses who will be taking care of our sweet baby girl as soon as she arrives.  Thanks for checking in!