After a long night at the hospital we are back at home. As for little miss princess, she is doing great! After Abigail's procedure the Dr. came in and said, "good news," words we unfortunately don't usually get to hear. So, of course we were very excited. Then after hearing the news our feelings changed slightly. Sometimes your interpitation of good news varies from a Dr.'s opinion, BUT it was good news.
The results:
Abigail has Vocal cord paralysis and laryngomalacia. The hope is for the laryngomalacia to heal on it's own within a year or so. There could be a chance that it could affect her eating and breathing in the future so it will just have to be monitored. As for the vocal cord paralysis it is uncertain at this time how it will continue to affect her. For those of you who know Luke's voice (a little scratchy) well that is what can possibly happen to miss Abigail. This obviously will continue to be a big concern as we approach another procedure in a couple months. However, we will continue to pray about it and whatever voice miss Abigail has it will be beautiful to us, raspy or not :) Now for the news that was great, she has an adequate airway space. This was very important and we are so blessed that this was not compromised during her surgery. Now we will just need to be extra cautious going into the next surgery.
Abbey is excited to be home and already has been sleeping and eating perfectly. Which reminds me, she is eating so well! It is truly a blessing. The only challenge we have is that she still tires out and the other being, she burns more calories than the average baby due to her heart condition. We will keep an eye on her weight and fortify (add more calories) if need be. We are just so very thankful that she actually has a desire to eat! Luke and Grace never had that, so this is something very new and exciting for us. We pray we continue on this path. There is nothing like being able to feed a hungry child and to see her satisfied. Which may seem silly to some, but many heart moms are all too familiar with this constant struggle. So, we will continue to be back on the path of enjoying being home with our sweet Abbey.
Being at the hospital and on the same floor where Gracie passed, well no words can express how we felt last night. We shed many tears last night and it was such a hurtful private moment. I rather not go into the hurtful details, I am just so thankful that God is sovereign and he lifts us while going through moments such as last night. I sat in the room and thought, Lord I know you took Gracie home to be with you and then you blessed us with another baby girl with a heart condition, I may not understand or ever know why, so all I can do is trust in you and lay my heart and life in your hands. How wonderful to be able to give it all to him. Thank you God.
There is so much more I would like to share but at this moment the only thing on my mind is SLEEP! I'm going to try and get a little before Little man gets home from school.
Thank you for all your support, love and prayers. Also, I am always thanking my friends and family...now I want to thank my extended family. The ones who I share a special bond with, "heartmoms" and my "blogger friends." Many of you I have never met and yet I feel such a special connection with you all. Your encouraging, loving and honest messages mean so very much to our family. Through all of this we feel so blessed to continue witnessing Gods plan that he is orchestrating. What a blessing to know that God placed all of us in eachothers lives. Just beautiful! Your journeys make me cry, laugh, and rejoice. Thank you for sharing your lives and for following ours.
All for now...thank you for checking in. and GOD BLESS!
All our love
Bless your heart! So thankful for the good news and the healthy appetite!
ReplyDeleteWhen my youngest son was an infant and having SVT problems, we were admitted into the PICU and placed in the room next door to the room in which our oldest son passed away after heart surgery about 13 years earlier. It was so HARD being there.
Take care~
Lisa
@ All That and a Box of Rocks
Praise be to God! You are home and Abbey is doing as well as can be expected - we are doing a "Happy Dance" right now! What a blessing that she is hungry and feeding well. I can only imagine how wonderful that is for you both. We will continue to hold you all in daily prayer. Enjoy your sweet little Abbey! We cannot wait to meet her:) Lots of love - The Queen Famly
ReplyDeleteWe are all glad that Abbey is back at home now. We wish all the best and continue to pray for the return of Abbey's loud and beautiful voice. My wife and Addy can't wait to see you again in better circumstances.
ReplyDeleteYour NICU friends-- the Chang family.
I am so happy to know Sweet Abigail is back at home - in your loving arms, sleeping and eating! Terra and Adam, my heart aches to think of how difficult this hospital stay was for you. I pray for your continued comfort and peace. Give Luke a hug and snuggle from Vivian and me!
ReplyDeleteSo sorry you had to go back to CHOC... I cannot imagine how incredibly difficult that must have been.
ReplyDeleteSo VERY glad that sweet Abbey is home, resting and eating so well.