I've been wanting to update everyone on how our home stay has been. Also, wanted to share how much we have been loving Abbey being at home with all of us and wanted to share some photos. Unfortunately, I have not had much time and now I am having to send out an update I wish I did not have to. We are heading back to the hospital and unfortunately not just any hospital, but CHOC (children's of Orange County) we have not been there since Gracie passed away and I've always shared how much I never want to have to return there again. However, Abigails breathing has not improved since we have been home. After visiting with Dr. Allevato (kids Pediatrician) she felt concerned with the breathing so she contacted an ENT (ear, nose and throat Dr.) We had our appointment with the ENT today and he was also concerned and expressed this should be looked at immediately. So, we scheduled her Laryngoscopy and Bronchoscopy for tomorrow (Thursday @ 4:15pm) she will need to be put to sleep for this procedure and we will need to stay overnight. Of course we were very disappointed, for a few reasons:
1. We expressed our concern with Abigail's breathing to LPCH before leaving and they never suggested an ENT even though we were very concerned. They said it should heal on it's own and to wait 3-6 weeks. Which the ENT Dr. here expressed they should of had her seen immediately) ughh so frustrating!
2. We have to put Abigail to sleep once again. :( This is so heartbreaking that she has to go under so soon after surgery.
I know this seems little compared to all we have been through, but we are just feeling frustrated because this should of been done earlier and we pray that everything goes well as our experience at this hospital "for us" has not always been great. AND being there is just going to be very difficult for the both of us. On January 9, 2008 when we walked out those doors without Gracie I said to myself I hope to never be back here. BUT going to LA would be a little too difficult trying to get things done asap and apparently that is how quickly this should be done.
Please pray for a quick procedure, quick recovery time and that there is not too much damage done to the airways. Also, please pray for mine and Adam's heart to be guarded and the strength we will need as we walk back into the hospital where we had to say goodbye to our sweet Gracie. Thank you for checking in and for your prayers.
Will let you know how it all goes. After we get through this I will send some recent pics and updates
Lot's of love,
Chez Family
oh Terra,
ReplyDeleteI am in tears reading this. I am so sorry to hear about Abigail having to go back. Praying for yours and Adams heart, and for God to guide the doctors hands. Please keep up updated.
Kathie
Praying without ceasing! God bless you all. Susan penniowa@yahoo.com
ReplyDeletePraying for all of you and for the doctors to diagnose and treat Abbey's breathing difficulties. I know the Lord will give you strength as you return to the hospital.
ReplyDeleteLove and hugs,
Cindy and Charlie
Thinking of your entire family and will pray for you and little Abagail. My heart is breaking for Abagail and all that she must endure, but for you, also, and the burden that you must carry for your children.
ReplyDeleteJennifer
jennifer@fourtran.com
www.fourtran.com
Terra and Adam,
ReplyDeleteThis was not the update we were expecting. We are praying harder than ever that the procedure is uneventful, they are able to pinpoint what is causing Abbey's breathing difficulties and that her recovery is quick. We pray for your strength. Sending you lots of love - The Queen Family
So sorry you have to return to a hospital, especially the one that holds such difficult memories for you. Praying that this procedure will give your sweet girl just what she's needing and that it will help with her breathing. Hang in there and heart hugs.
ReplyDeleteOh my goodness. Terra, I wish I could be there for you. I cant believe all that is happening to both of our girls since we talked only the day before.
ReplyDeleteKnow that we are praying for Abbey as well as for protection over you and Adam.
Lots of love and hugs my friend,
Victoria
Terra, I'm so sorry! My thoughts and prayers are with sweet Abigail and your family.
ReplyDeleteEmily
I am so sorry that you have to be back in the place that holds many sad memories for you... We are praying for Miss Abigail and for you and Adam... and the strength that you are needing right now. We love you...
ReplyDeletePraying for your sweet baby and your family.
ReplyDeleteSweet Chez family...it is a big deal. It doesn't seem small in the least, with all that you have been through. I am glad to hear that she is going to be looked at more thouroughly...this has bothered me since you posted it! I am most definitely praying protection over your beautiful Abigail through all of this...and for an absolute peace for you and Adam as you continue this path.
ReplyDeleteMuch love and prayers coming your way....
Absolutely holding Abigail and you all in my prayers. I pray for your comfort, peace and faith. I am so sorry to read this news and so hopeful that as I type this you are holding sweet Abigail in your arms, and that you have some answers. Much love*h
ReplyDeleteI found your blog through Nevaeh and I have been praying for all of you. I have also lost my little boy to a CHD and I am so sorry to hear all that your family continues to go through. It was especially heart-wrenching to read your post about going back to the hospital with Abigail-the same hospital where Grace passed away. I understand how you feel-I made the same vow to never return to the hospital where my little boy passed away. I pray for strength for all of you and a quick recovery for Abigail. I am so sorry you have to endure so much.
ReplyDeleteLove & Prayers,
Melanie