Home sweet home

We feel so blessed to tell you that we arrived home late Saturday evening.  Although we have to return in two months for her second open heart surgery, we are excited to be back home.  Luke, Grandma Laura and Grandma Marsha share the same excitement with us.  Abigail is doing well.   Unfortunately, she struggles while eating, which we are all to familiar with.  She still seems to be very uncomfortable and very sensitive to the touch.  Also, she is having quite a bit of difficulty with breathing.  When they extubated her they believe there was some damage done to either her vocal cords or it could be swelling in her air ways.  We were told to wait 3-6 weeks to see if it clears.  This of course is extremely stressful as we watch her try to sleep and eat. It’s like she is just gasping for air.  Please help us pray that this will heal on it’s own and that her vocal cords were not affected.  

We will also need to pay attention for heart failure and many other concerns until her next surgery.  Dr. Hanley has asked us to be extremely cautious in trying to avoid Abigail getting sick, it could be very dangerous with her current repair and could effect the next surgery. Which is difficult considering we have Luke (4) with school starting and of course anxious to get back to visiting friends.  Poor guy, he thought he used to wash his hands alot.....wait until now.  Lucky for us he is really good about not touching sissy’s face.  He loves to rub her head, tummy and kiss her forehead (which melts our hearts) 

We are so excited to see everyone and welcome visitors however, as for the little ones we may have to hold off for a few weeks until Abbey can gain her strength.  We need to keep her healthy and strong.

We will be visiting our cardiologist within a week and will need to be followed very closely.  I will send an update after our next hospital visit.  Also, when I get a chance I will send some updated photos.

Thank you for lifting us up in prayer!

All for now....

Much love, Terra

Getting Miss Abigail ready for her departure

Ok...Daddy and Mommy time to go

Yes, I am completely aware how tired I look 

however, I had to post this picture

 because it was such a great moment

We woke Luke up and told him he had a 

surprise in the living room. He was so excited!!

Finally....sleep without machines beeping

Lori and Ray meeting miss Abigail

Grandpa Jim and Kendra